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Thursday, 01 December 2011

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Devorah Zealot Soodak

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Thanks.

Devorah Zealot Soodak

Tadzio

Hi Zealot,

I went through a sun lamp treatment back in 1968-69 for the "cure & cause" of my nevi (plural?), and specially for my Becker's Nevus. It was a Montgomery-Ward regular 600-800 watt "arc" sun lamp for quick tans, at about $100. It didn't help, and it made my skin itch so much that the "treatment" disrupted my sleep. My next doctor blamed the sun lamp and too much regular sunshine for my nevi, and he recommended more calcium, vitamin D, and iron to treat the co-morbid anemia. The more physical aspects of epilepsy were then labeled as just muscle spasms.

I looked at amazon-dot-com, and I see even 200 watt Sperti D/UV florescent Supplement Lamps start at $400 now, while the "older" arc lamps are cheaper, but now only recommended for indoor gardens instead of people. The months around winter seem the most challenging both inside and outside, while the summer days re mainly a problem only if the A/C quits.

My faint birthmarks flared more like shagreen patches in the early 1970's. The worst protruding ones near my face were near the scalp line, and I finally gave up on treatments by resorting to snipping them back with wire-cutters whenever they flared above skin level. Except for the Becker's Nevus, they cycle from being very faint to very marked & larger on my body, with the worse one now about 2 inches in diameter and a couple dozen other lesser patches. My last doctor shrugged off the patches on my hands as Lichen Planus from an unknowable cause (one source recommends ultraviolet light therapy also: http://health.howstuffworks.com/skin-care/scalp-care/problems/lichen-planus.htm ). With epilepsy being included, a sclerois again sounds more plausible for me, with most all aspects of tuberous sclerosis being somewhat met. Since I've had severe bouts before any medications, I know Keppra couldn't be a sole cause, but that would be a Medicaid doctor's money saving next Catch-22 response.

I posted on your forum at epilepsy-dot-com about the new miracle cure Rapamycin that's already fallen short with epilepsy.

I'm trying to figure out how to use the "Kindle Fire" on the web. The display is readable for your blog here, but it is next to impossible to "click" any links accurately (I already bought a magazine just by trying to scroll through the list of magazines), so I wonder is any type of screen-pen would help. Many websites have features that don't work (or disappear) with the Fire. Facebook demands a new account with a non-encrypted password when I tried it on the Fire (then Facebook on Chrome switched to "auto" entry for some reason?).

Have a happy Thanks Giving, and I hope Medicare will cover a quality supplement lamp.

Lots of Love,

Tadzio

Devorah Zealot Soodak

Tadzio,

Sorry I didn't write back sooner. Your comment was in my spam folder. I thought you had left a comment and finally thought to look for it there.

I ended up buying a regular sunlamp from Sperti because it was $300 instead of $400. I've yet to wrestle it out of the box. I really need to because I'm pretty sick.

Aside from that, now that my thyroid levels are straightened out (thanks to me, of course), I'm feeling much better. My brain is working much better although the lack of vitamin D is causing me neurological problems. It seems like it never ends.

It's hard to know what skin problems are. They are often symptoms of seemingly unrelated things. They are quite often related to immune system problems, which is not surprising considering that your skin is a huge part of your immune system.

It would be nice to stop itching for awhile, wouldn't it? I sure hope my skin clears up once I manage to get my vitamin D levels up. I have to be optimistic and believe that I can do it.

Facebook is really weird lately. I would not use it without a secure connection. If it won't let you with the Fire, than I'd stay off. It really isn't worth risking getting hacked.

I haven't gotten any mail notifications of new postings on my forum on epilepsy-dot-com. Maybe they're going to the wrong place again. I'll have to take a look.

I hope that you had a really good Christmas. Write back soon.

Baruch Hashem. Hoshia na.

Lots of Love,

Devorah Zealot Soodak www.psychout.typepad.com/ the zealot lives!

P.S. Please click here to read my most recent post Michael F. Hogan, PhD: The Epileptic Zealot Harps on the Commissioner of the New York State Office of Mental Health

P.P.S. Please click here to read my previous or featured post Carpe Diem: The Epileptic Lunatic Leper is Sunless in Philadelphia

P.P.P.S. I made another video. Please watch it on YouTube.

P.P.P.P.S. I recorded a video and put it directly on Facebook! Please watch it!

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