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Wednesday, 09 March 2011

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Devorah Zealot Soodak

Sign in or fill in the requested information. It's really easy. I promise I'll answer.

Thanks.

Devorah Zealot Soodak

Tadzio

Hi Zealot,

With the days being warmer, the centeral heating system sitting idle until hours after midnight wakes me coughing from the settled dust being baked and blew through during the first cycle. The system has spiraled vinyl air-ducts that are becoming more of a problem each year. The neighbors discovered that if the vents are completely closed, the duct will "blow" off the vent, and discharge into the attic (they found out why that nail was in each vent to prevent complete closure), and now, the dangers of trying to clean out any dust that has made it past the intake filters are apparent.

I think my virus is finally leaving, so I'm getting back to my normal partial seizures and migraines, while being ready to prevent the secondarily generalized tonic-clonics when clusters of seizures start. I'm trying to get more day-to-day provisions by delivery with all the "free shipping" offers, and to try the limits of life out of a can; delivered frozen foods are three-times more expensive. Getting anything locally (and getting it back home), is becoming more limited in choice, price, and availability.

The gardening here is limited to mainly spring and very early summer flowers, so the best time of the year is beginning!!!

I had much better luck growing vegetables in Santa Cruz County, CA. Places in the foothills there, every plant in the world could thrive.

Lots of Love,

Tadzio

Devorah Zealot Soodak

Tadzio,

I'm so happy to hear from you. I'm so glad you're well enough to write. I was starting to get a little worried.

I am also having trouble with the forced hot air heat. I wake up in the middle of the night from it, choking. I feel like it's out of the frying pan into the fire.

There is a Whole Foods a quick bus ride away. I love Whole Foods, but it is expensive to shop there. I need to find a way to get staples into the house. I think mail order is the way to go.

The big supermarkets are a real schlep. Two long bus rides plus walking. I don't think it's possible.

There is nothing near the house. Broad Street is a 15 minute walk from here. There are stores, but I don't really know what kind. This is the ghetto and there isn't much here.

Too bad you can't move back to SoCal. Life sounded better there. Too bad I can't get my old life back. I'm having trouble making a go of my "new" one. I don't feel like it's much of a life right now. Big oh well.

Baruch Hashem. Hoshia na.

Lots of Love,


Devorah Zealot Soodak www.psychout.typepad.com/ the zealot needs help!

P.S. Please click here to read my latest post Carpe Diem: Is the Jewish Zealot Lunatic Epileptic Leper Home in Philadelphia?

P.P.S. Please click here to read my latest or last featured post Carpe Diem: The Jewish Zealot Lunatic Epileptic Leper Harps on Flower Power in Philadlephia

P.P.P.S. I made a new video. Please watch it on YouTube.

P.P.P.P.S. I recorded a video and put it directly on Facebook! Please watch it!

Tadzio


Hi Zealot,

Epilepsy-dot-com Spam-Trap tripping campaign is at work again, so my expanded post crashed. It was briefly hot here, and my migraines are pausing more and more, leaving me in a "displaced" feeling.

I was going to post 4 responses. Only one posted, lost two of them, and saved the following one. I hope it makes sense.

Lots of Love,

Tadzio

http://my.epilepsy.com/blogentry/994628

Hi Alina,

Peers, professionals, professors, and fellow students can become quite crude and prejudicial when a person with epilepsy is involved in their discussions.

Back in the 1980's, I sought relief under the Rehabilitation Act, since some federal judges were ruling everything from sensitivity-to-cigarrette-smoke to epilepsy, was protected from discrimination, until the Supreme Court ruled nothing was a protected disability. Only one agency EEOC counselor recommended that I be hired after he reviewed the agency records that verified I had the best job scores amongst the certificate group, labeled with a remark for me re "the public takes this type of impaired person as a stressful and troublesome doozy" (others agencies cited that epilepsy implied failure with most everything of merit). Administrative Law Judges (ALJs) soon taught me that entire organizational hierarchies regarded epilepsy as meaning failure, despite any contrary evidence of great success.

The classics that I had already read became very helpful, from Aristophanes to Jane Austen, as Joseph Heller's "Catch-22" is too optimistic, though memorizing Catch-22 was feasible, but it was lacking in scope against the best bitter, cynical, and satirical writings in the world. So, soon as the ALJs started giving it, they started getting it in return (sticking pins into ALJs' bubbles is an active relief, but one of them demanded that I lecture him in Rabelais with my epileptic gifts from the gods, though he continued to brown nose the agencies' views of epilepsy otherwise).

Adferat ipse licet sacras Epidaurius herbas; Sanabit nulla vulnera cordis ope. http://books.google.com/books?id=iQZ9IM3PHC4C&printsec=frontcover&dq=the+mangy+parrot&hl=en&ei=7MqWTf24CoGosAOMgtnLBQ&sa=X&oi=book_result&ct=result&resnum=1&ved=0CC4Q6AEwAA#v=onepage&q=epilepsy&f=false
Let the Epidaurian in person bring holy herbs, he will have no skill with which to heal wounds in the heart. (Aesculapius, whose greatest
temple was at Epidaurus.): http://www.archive.org/details/ovidtristiaexpon011949mbp

Tadzio

Devorah Zealot Soodak

Tadzio,

I've posted replies on Alina's fora, but I've never read her blog. I don't read the blogs on epilepsy-dot-com. I guess I should. People really pour their hearts out there.

Your reply was very kind. I don't know what makes people feel they have the right to be so abusive. I don't know what makes the judges feel so free to act with prejudice. I know even less what makes the doctors feel so free to act with prejudice because they shouldn't have ignorance as an excuse. Shoulda, woulda, coulda. Who knows. Maybe they don't.

This stuff upsets me beyond belief. I was able to hide my disabilities and work around them for quite some time. When I no longer could and the medical establishment got ahold of me, it was all over. Now I really am disabled and I don't think I otherwise would have been.

It seems that the ADA has been stood on it's head and is now being used to codify discrimination against the disabled. I understand why you enjoy sticking pins into judge's hot air balloons for sport. I know that you know that it will not serve your purposes, but I think that your assumption that their prejudice will triumph over justice is correct.

I was just befriended on facebook by someone who figured out that I have a problem with epilepsy. He was a friend of a friend and saw me posting on other people's threads. I guess it takes one to know one. He is divorced since his diagnosis and his ex convinced a judge to deny him visitation rights with his youngest because he was an undiagnosed schizophrenic. He's also done stints in the bin and has lost count of how many times he's woken up in restraints because of his seizures. There's more and it's worse. Another horror story. Sound familiar?

I'm having trouble with my own breathing problems. The landlord changed the air filters on the heating system and that has helped. You ought to investigate the state of air filters where you live. That makes a huge difference.

I had a couple of really bad nights where I was coughing for hours. I have to dose up on the meds and that combined with the lack of sleep and not breathing properly gets me on a hair trigger. I also keep getting those bizarre "migraines." Those "that isn't a seizure" things I keep having for which no one seems to be able to give any alternate explanation.

I'm just as happy not to have epilepsy. I need a real doctor who will help me get disability for the asthma/COPD. It is debilitating. The pulmonologist gave me the bums rush and a come back and see me in six months. I don't think so. He charged me a lot of money and I didn't even get an accurate diagnosis. I am suffering from acute exacerbation due to my living conditions and he didn't check that box.

The doctors at Jefferson suck. They don't practice medicine; they phone it in. They are in business for the money. The place reeks of it. They are so status conscious and they really aren't all that. They're not even the top hospital in Philadelphia and their highly touted neuro unit isn't even in the top tier in the country.

I think I want to read those books. I've never read Ovid, that is a gap in my education. My Latin isn't good enough to tackle it in the original and my head hurts too much right now to learn a new language. Nothing breathing and enough sleep mightn't cure. I'll read it in English. I'll try to get a good used edition.

The mangy parrot is intriguing. I'll take a look at more of the excerpt. My reading list is impossibly long. There aren't enough hours in a lifetime to read everything I still want to read.

But I'm rambling. I'm tired and hungry. I need some supper.

Thanks for writing. I'm always so happy to hear from you. I look forward to hearing again from you soon.

Baruch Hashem. Hoshia na.

Lots of Love,


Devorah Zealot Soodak www.psychout.typepad.com/ the zealot needs help!

P.S. Please click here to read my latest post Carpe Diem: Is the Jewish Zealot Lunatic Epileptic Leper Home in Philadelphia?

P.P.S. Please click here to read my latest or last featured post Carpe Diem: The Jewish Zealot Lunatic Epileptic Leper Harps on Flower Power in Philadlephia

P.P.P.S. I made a new video. Please watch it on YouTube.

P.P.P.P.S. I recorded a video and put it directly on Facebook! Please watch it!

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